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Post by Anna Roan on May 3, 2014 22:04:21 GMT
If you want to complain about symptoms you have, talk about things you've heard in the community or just want to share some personal stories in your POTS lifetime here's the place to do it  |
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tivo
New Member
Posts: 2 
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Post by tivo on May 5, 2014 16:49:54 GMT
Thx for setting up this site. I'm really glad it's organized |
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Post by Anna Roan on May 5, 2014 17:08:27 GMT
Thanks spread the word, I was hoping to make a POTS chat room almost, but it's not gonna go very far with only 5 people  |
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Post by MessJess on May 6, 2014 22:11:41 GMT
Hey I've actually been looking for some POTS friends or people to connect up with for a long time so I think it's great. Any other suggestions on where to find people? |
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Post by Anna Roan on May 7, 2014 1:04:13 GMT
There are several face book groups and a few tumblr pages that are useful im trying make this a place to connect but its harder than I thought xP Sent from my SPH-L710 using Tapatalk |
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tivo
New Member
Posts: 2
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Post by tivo on May 9, 2014 16:59:08 GMT
Maybe make a fb group, but describe this group & send people here. It seams like posting in the groups already around may be not the most "ethical" way. However POTS fb group has been nuts lately. U posted there once. Now may be a good time to do it again
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Post by Randy on Aug 27, 2017 23:40:57 GMT
My GirlFriend has POTS, I was wondering if anyone have gotten the Daith piercing for the chronic migraines?
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Post by Helen on Nov 21, 2017 2:46:33 GMT
Hey, What do you guys think about camping in the cold with POTS?
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Post by Sammy on Feb 19, 2019 22:38:01 GMT
Has anyone ever had to quit a job because of POTS? I just started a new job, but my symptoms got worse and now I feel sick constantly. Please let me know!
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Post by Annelise on Jun 23, 2019 2:07:33 GMT
Hey, I was just diagnosed (after 7 months of testing😐) and was wondering if you guys wear a medical alert bracelet for the meds you take? My beta blocker bottle says I should:(
I'm only 13, do you guys have any tips and tricks for me to get through the flare-ups?
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Post by Taryn on Mar 15, 2021 18:12:04 GMT
If you want to complain about symptoms you have, talk about things you've heard in the community or just want to share some personal stories in your POTS lifetime here's the place to do it |
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Post by Taryn on Mar 15, 2021 18:13:33 GMT
I've just been diagnosed with pots ! My life is so difficult at the moment! Is there anyone one her now that o could possibly talk too?? Thank you
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